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CFIDS News

University of Melbourne Survey

Researchers from the University of Melbourne, Australia would like to talk to you about your experiences with CFS/ME. We are interested in learning about what your life is like with CFS, how you manage, and how you understand CFS.

This study involves participating in a confidential interview (in your own home if desired) for approximately 20 minutes* and completing a short questionnaire.

For further information, please contact David Evans from the Centre for the Study of Health and Society.

David can be contacted by email at: d.evans2@pgrad.unimelb.edu.au or by telephone on 0408 313 743.

*Please note: The interview could be stressful, 60 minutes duration. If you are interested, we suggest you obtain the information on the survey before making up your mind to participate.

Current Research Articles:
1. Researchers Identify A Key "Brake" Of The Immune Response
2. Challenges of the Chronic Fatigue Syndrome
3. Prescribed Medications for Fibromyalgia
4. SOME FACTS ABOUT ME/PVFS/CFS
5. What is neuroimmunomodulation (NIM)?
6. What does NIM mean for CFS patients?


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Researcher tracing CFIDS - Blood Transfusion connection

Many thanks to the small number of people who replied to my request for histories of blood contact-acquired CFS/ME - too small to create a research database. Since I made the request, a Belgium research study of over 1000 CFS/ME patients has found that around 6% traced their CFS/ME to a blood transfusion. The study does not appear to have classified other types of blood contact. This is strong evidence of a CFS/ME blood-borne infection in these 6% of patients and suggestive of the possibility of the same infection in all CFS/ME patients. The UK Public Health Laboratory Service (PHLS) has published a report on UK blood transfusion-acquired infections over the past 7 years and most of these are bacterial. And nearly all of these bacterial infections are coagulase-negative staphylococcus species. For a summary see here: Serious hazards of transfusion (SHOT): report for 1999-2000 http://www.phls.org.uk/publications/CDR%20Weekly/archive/news/news1301.html

Dr Jed Gallagher BSc MSc England http://www.square-sun.co.uk/cfs-nim/index.htm

see: Co-Cure: http://listserv.nodak.edu/scripts/wa.exe?A2=ind0112e&L=co-cure&F=&S=&P=1037

or Help ME Circle: http://listserv.surfnet.nl/SCRIPTS/WA.EXE?A2=ind0112e&L=me-net&H=1&O=D&P=2535

 

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Disclaimer:  I am NOT a medical professional.
I am a CFS - EBV sufferer who is relaying some of his experiences and opinions.
None of the information on these pages is to be construed as medical advice.  Please see a doctor for such advice.
Due to the nature of my illness, I am unable to work for a regular employer in my former occupation as a journalist, and have started this Website, it's mirror sites and others, as an information resource and business. 
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