Definition
of Chronic Fatigue Syndrome:
Chronic Fatigue Syndrome is a devastating chronic organic illness that affects the
immune system, brain and
central nervous system, causing wide spread pain and an overwhelming
sense of being unwell. There is severe,
disabling fatigue with exhaustion that may require bed rest for months
and the disease can
go on for years in a relapsing, viral-like pattern.
It shares many
symptoms as Myalgic
Encephalomyelitis (M.E.), Chronic Fatigue Immune Dysfunction
Syndrome (CFIDS), and may include
Multiple Chemical Sensitivity (MCS), Gulf War Syndrome (GWS), Fibromyalgia
(FMS),
Environmental Illness and Neurasthenia. Neurasthenia, meaning "weakness," is the
old name for CFS. More definitions are here, as well as
discussions on the Epstein Barr Virus &
Herpesvirus.
Treatment
- The management plan that I follow is
here. It discusses lifestyle changes necessary to reverse
the symptoms of CFIDS. If you have it, you can overcome the
effects of CFIDS if you detox and come to terms with it. Many
sufferers linger with the disease for 10, 15 and more years. In
the majority of cases it seems that the long term stress and impact on
the weak immune system can be overcome by a long term healthy approach
to living.
Research
- I am currently processing a pile of research papers on this website,
particularly on the HHV herpesvirus and Epstein Barr
HHV EBV4.
My own story - "I
was in Papua New Guines in 1981 for herpes simplex II and caught Glandular Fever, or the
Epstein-Barr Virus in 1986.
I did not listen to my body telling me to slow down, and
after continuing with my hectic media career, including two Olympics, the periods of
intense fatigue gradually got
worse.
After ten years I began to suffer badly from fatigue and finally began
to slow down, but still did not understand the nature of the disease,
and worked and played hard.
Fifteen years later and the ultimate
crunch came following a period of sustained emotional stress.
CRASH - one year with the main symptom being total incapacitation,
asleep for 12 or 14 hours, then up with mental fog and other symptoms
before crashing out again a few hours later.
Three
years later the recovery has been long slow and painful. I am
housebound, being incapable of
work or normal social activity.
Memory loss and other symptoms particularly muscle fatigue - living
under strict diet and regime of stretching and therapy - has been
overwhelming but I have improved recently.
I now realise that I will have this for a long time - perhaps
the rest of my life - but, like asthma or diabetes, it is manageable.
Marcus
Webb
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